
UC professor seeks to make death care more inclusive
Equal Deathcare offers resources for the LGBTQIA+ community
A University of Cincinnati professor wants everyone to have control of their death care — including people in at-risk and marginalized communities.
Jennifer Wright-Berryman, PhD, an associate professor of social work in UC’s College of Allied Health Sciences, is one of the founders of Equal Deathcare, a web-based resource where LGBTQIA+ individuals can find inclusive and affirming end-of-life and death care (funerals, memorials and pre-planning).
“Groups that are at risk or marginalized, such as sexual and gender minorities — groups that I’m particularly interested in outcomes for — those voices weren’t included in these conversations around death care, especially when we talk about transgender individuals whose bodies and identities are often maligned in society,” Wright-Berryman said.
Transgender people whose identities aren't accepted by their families often aren't memorialized as they want. Issues include deadnaming, the act of calling a transgender or nonbinary person by their birth name after they have chosen a new name; identifying a person by a gender that doesn't align with their identity; and dressing them in clothing that represents their birth gender.
Medical examiners or funeral directors might put a gender on a death certificate that doesn't align with an individual's identity. Funeral homes might have religious leanings that some people aren't comfortable with, or they might not want to host a service that honors an LGBTQIA+ person's wishes.
Photo/Jennifer Wright-Berryman/provided
“The funeral industry is traditional and very, very slow to change,” Wright-Berryman said. “Getting this work done, we know it’s going to be glacial, it’s going to be slow, but one change at a time.”
Wright-Berryman’s work in the field, which is an extension of her research into suicide and ways to prevent it, began with her realization that she didn’t know enough about death care.
Because death can be a taboo subject, people often aren't prepared, and their final wishes may go unfulfilled.
“People in general don’t want to think about their own death,” Wright-Berryman said. “So they don’t want to think about prearranging their death care.”
In her quest to learn more about death care, Wright-Berryman conducted a study that looked at funeral home websites to see if they had any language, graphics, or forms to let members of the LGBTQIA+ community know they would feel safe while arranging services for themselves or a partner, spouse or family member. A random sampling of 90 funeral homes across the United States found no instances of language, symbols, imagery or LGBTQIA+-friendly collaborations.
“There are some who are phenomenal, and they’re already out there,” Wright-Berryman said of welcoming funeral homes. “They’re just hard to find.”
Following the publication of her paper, Wright-Berryman became involved with some of the most consulted trade publications in the funeral industry and presented her findings at a conference to funeral home owners and directors. At the conference, she offered suggestions on how to make their businesses explicitly safe places for the LGBTQIA+ community.
“Even LGBTQ folks in the death care industry don’t think about the fact that you can’t always rely on word of mouth,” Wright-Berryman said.
Wright-Berryman has seen some resistance from funeral homes to make death care more inclusive, but many others are open to the idea. However, she said, even some who are supportive may be hesitant to openly show their support.
“When the funeral industry sees this happening, even if they’re open to making their death care more accessible to the pride community, they may retract, become hesitant or withdraw for fear of backlash,” Wright-Berryman said.
Equal Deathcare, which Wright-Berryman founded with Kat Vancil-Coleman, a graduate of the Cincinnati College of Mortuary Science, aims to fill in the gap and provide resources for funeral planning, end-of-life care, grief support, affirming providers and more.
The group has a team of national advisers to assist individuals with death care issues and is reaching out to LGBTQIA+ organizations to collaborate on identifying safe places and making resources more readily available.
Equal Deathcare also evaluates federal and state-level policies related to death care to see if they're written with LGBTQIA+ people in mind.
“When marriage equality became legal in 2015, I think we thought, ‘Oh, this is magic!’ because spouses who are legally married can be the first in line to make death care decisions, end-of-life decisions, claim remains and all these sorts of things,” Wright-Berryman said. “But what’s happening in some states, even though we have federal marriage equality, people are still suffering from discrimination.”
Photo/The Good Funeral Guide/Unsplash
Even people who prearrange their death care can be unaware of laws and regulations, Wright-Berryman said. For example, people often think a power of attorney or medical care proxy will allow a trusted person to make their death care arrangements — but both become null and void upon death.
Wright-Berryman said there are options available to prearrange death care, including ones that don't cost a lot of money. State-level documents can be filed individually or through an attorney to detail death care preferences.
While Wright-Berryman's work largely focuses on the LGBTQIA+ community, she said, preplanning is valuable for anyone regardless of their gender or sexuality.
Prearranging memorials can help reduce costs and allow individuals to choose how they'd like their life to be celebrated. Perhaps they don't want the traditional somber setting with everyone wearing black.
There are also numerous options for body disposition beyond a traditional casket burial or cremation, including eco-friendly options, and many are becoming more popular, Wright-Berryman said.
She hopes that education will help lead people to self-advocacy and then lead to policy and industry changes.
“If we’ve got millions of LGBTQIA+ folks coming up and saying, ‘I want the kind of funeral, memorial, burial, body disposition that aligns with my life story, my identity’ — if they come out strong and ask for it, it will start to change more quickly,” Wright-Berryman said.
Featured image at top: Sarah Johnson Photography/Unsplash
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